The Dementia Spectrum
from Understanding....to Living
People who are Living within the spectrum of Dementia....are still just people who continue to need to love, have purpose, experience Joy and connect with other humans.....
with the right support can still SHINE ON..


My Favorite Resources
Books
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The Best Friend's Approach to Dementia Care by Virginia Bell and David Troxel
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I"m Still Here by John Zeisel, PhD
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The Spectrum of Hope - by Gayaatri Devi, MC
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The Dementia Concept by Joshua J Freitas
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Dementia with Dignity - Judy Cornish
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Life Story Work with People with Dementia - Polly Keiser & Ruth Eley
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Validation by Naomi Feil
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Together-The Healing Power of Human Connection-Vivik H. Murthey MD
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Soundtrack to My Life by John Osborne
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The Enduring Self in People with Alzheimer's by Sam Fazio
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Connecting with Socially Isolated Seniors by Paricia Osage
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Connecting through Music with people with Dementia: guide for Caregivers by Robin Rio
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If Only You would Ask: A guide to spending Quality Time with the Elderly -Eileen Berger and Joan Bachman
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Dementia Beyond Drugs: Changing the Culture of Care - G Allen Powers, MD
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Learning to Speak Alzheimer's by Joanne Koenig Coste
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The Art of Dementia Care - Daniel Kuhn and Jane Verity
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Alzheimer's Proofing your Home - Mark L Warner
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Moving a Relative with Memory Loss - Laurie White & Beth Spencer
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Qi Gong for Wellbeing in Dementia and Aging - Stephen Rath
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Musicophilia: Tales of Music and the Brain- Dr. Oliver Sacks
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Living Well with Dementia through Music - Catherine Richards
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Movement with Meaning:A Multi-sensory Program for individuals with Early Stage Alzheimer's Disease - Barbara Larsen
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Activities to Do with your Parent who has Alzheimer's Dementia- Judith A Levey, EdM, OTR
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Super Brain by Deepak Chopra, MD and Rudolph E Tanzi PhD
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Together, The Healing Power of Human Connection by Dr Vivek Murthy MD
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Connecting with Socially Isolated Seniors- Patricia Osage
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Aging Backwards - Miranda Esmonde-White
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Creating Moments of Joy - Jolene Brackey
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Somebody I used to know - Wendy Mitchell
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What I wish people knew about dementia - from someone who knows -Wendy Mitchell

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ADEAR - National Institutes on Health- Dementia resource
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CHAIN NETWORK - world resourcesDementia Action Alliance - by Individuals with dementia
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Dementia Australia A truly Dementia Friendly Country
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Dementia FriendsUSA - Helping Communities become Dementia Friendly
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Dementia Alliance International - the Global Voice of Dementia
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Dementia Resources - part of Research Institute on Aging
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Flipping Stigma Toolbox - Reducing Stigma for those living with dementia and those who care for them
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Global Alliance for the Rights of Older People Healthy Brain Initiative
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How to make your home Dementia Friendly- Guidelines UK - NHS
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LegacyStories.com
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LIFE STORY WORK GUIDE: Manual for Life Story Reminscensce Work
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PlaylistforLife - Easy to follow resources for finding YOUR music
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Science behind Essentrics - Miranda Esmonde-White
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TeepaSnow.com Positive Approach to Care
NEWLY DIAGNOSED? NOW WHAT??
CLICK HERE: https://forwardwithdementia.ca/living-with-dementia/

HelpfulWebsites

Research/Reports
Current RESEARCH project on Living Well with Dementia by Dementia Research Institute -
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Trends in Cognitive Sciences 4/2013 Vol17 No 4: Review - The Neurochemistry of Music by Mona Lisa Chanda and Daniel Levitin.Dept of Psychology McGill University, Montreal Quebec QC H3A 1B1
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Individualized Music for Persons with Dementia: A general evidenced based practice guildeline. 6th Edition Linda G Gerdner Phd, RN,FAAN written 1996/ Revised 6/18y, PhD
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Intergenerational Activities Resources Kit: by Sharon MacKenzie BA MEd, of BC Community Response Network
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Why Play Music for Seniors. by NAMM
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Generations United -Eisner Foundation "The Best of Both Worlds". A closer look at creating spaces that connect young and old
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Life Story Work - use in aged care settings - Australian Psychological Society
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Physical Exercise as a Prevention or disease modifying modality
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Study on Cognitive benefits of use of photographs and reminiscense therapy

Film/Video
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Alive Inside by Michael Rossato-Bennett - Award winning documentary
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There is a Bridge - by Michael Verde - Beautiful Documentary
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Glen Campbell I'll be Me - by James Keach
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Complaints of a Dutiful Daughter - by Deborah Hoffman
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WHAT IS ALZHEIMER'S DISEASE Simple Easy to Understand Basic What is
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Gladys Wilson and Naomi Feil - Example of REALLY SEEING another human being using Validation theory
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The Power of True Kindness - Use for Youth Empathy Training
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Teepa Snow's GEMS A unique look at the Levels of Cognition and how to best Support a person
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The Brain Fitness Program - PBS Explorer Series
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I Remember when I Paint - using Art as a tool for Connection
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Disney Film "Coco" - showing youth the power of acceptance, music and connection
WHAT ITS LIKE TO HAVE DEMENTIA
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Dementia From the Inside Out - created by people living with dementia:
https://youtu.be/Erjzl1WL8yQ -
A Walk Through Dementia Series Website: https://walkthroughdementia.org/
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How a Person with dementia Sees the World: https://youtu.be/q_sWiwI3yP0
For Children

For Care Partners
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National Aging Services - Resource network
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Rosalynn Carter InstituteSupporting Family Caregivers
What to look for in a care community by Care.com
https://www.caring.com/senior-living/assisted-living/assisted-living-for-seniors-with-disabilities/
