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Learn to Live With Dementia

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Helpful Resources

Books

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  • The Best Friend's Approach to Dementia Care by Virginia Bell and David Troxel

  • I"m Still Here by John Zeisel, PhD

  • Dementia Care Partner Guide - Teepa Snow, MS OTR/L FAOTA

  • The Spectrum of Hope - by Gayaatri Devi, MC

  • The Dementia Concept by Joshua J Freitas

  • Dementia with Dignity - Judy Cornish 

  • Life Story Work with People with Dementia - Polly Keiser & Ruth Eley

  • Validation by Naomi Feil

  • Together-The Healing Power of Human Connection-Vivik H. Murthey MD                                       

  • Soundtrack to My Life by John Osborne

  • The Enduring Self in People with Alzheimer's by Sam Fazio

  • Connecting with Socially Isolated Seniors by Paricia Osage

  • Connecting through Music with people with Dementia:  guide for Caregivers by Robin Rio

  • If Only You would Ask:  A guide to spending Quality Time with the Elderly -Eileen Berger and Joan Bachman

  • Dementia Beyond Drugs: Changing the Culture of Care - G Allen Powers, MD

  • Learning to Speak Alzheimer's by Joanne Koenig Coste

  • The Art of Dementia Care - Daniel Kuhn and Jane Verity

  • Alzheimer's Proofing your Home - Mark L Warner

  • Moving a Relative with Memory Loss - Laurie White & Beth Spencer

  • Qi Gong for Wellbeing in Dementia and Aging  - Stephen Rath

  • Musicophilia:  Tales of Music and the Brain- Dr. Oliver Sacks

  • Living Well with Dementia through Music - Catherine Richards

  • Movement with Meaning:A Multi-sensory Program for individuals with Early Stage Alzheimer's Disease - Barbara Larsen

  • Activities to Do with your Parent who has Alzheimer's Dementia-Judith A Levey, EdM, OTR

  • Super Brain by Deepak Chopra, MD and Rudolph E Tanzi PhD

  • Together, The Healing Power of Human Connection by Dr Vivek Murthy MD

  • Connecting with Socially Isolated Seniors- Patricia Osag

  • Aging Backwards - Miranda Esmonde-White

  • Creating Moments of Joy - Jolene Brackey

  • Somebody I used to know - Wendy Mitchell

  • What I wish people knew about dementia - from someone who knows -Wendy Mitchell

  • Music Has Power in Senior Wellness & Healthcare by Concetta Tomaino

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Websites

Research/Reports

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 Current RESEARCH project on Living Well with Dementia by Dementia Research Institute -

                                              CLICK HERE FOR MORE INFO

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Teepa Snow's 
Resources for People
Living with Dementia

 

Film/Video

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WHAT ITS LIKE TO HAVE DEMENTIA

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For Children

The Power of Life Story

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People living with dementia may not be able to remember recent events, but through creative reminiscing, we can help them capture their sense of self...and bring connections to those cherished memories and events of their lives....and strengthen their sense of Self.

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​Life stories are a cornerstone of person-centered care, which focuses on the individual's needs and preferences. By understanding a person's life story, caregivers can tailor their care plan to meet their specific needs and preferences, promoting a sense of control and autonomy. 

 

The process builds a connection of trust & friendship with your loved one. Reminiscing is a wonderful activity for a care partner that can be included in the daily routine that gives both the person with dementia and the care partner a purposeful and enjoyable part of their day.  In addition, collecting and using those memories and moments that are important to the person with dementia in a document like this example of a "Life Story Snapshot" can become the basis for better assisting the individual while maintaining dignity and quality of life as the disease progresses and more hands on care is required.

WHAT IS A LIFE STORY SNAPSHOT?

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Creating, Saving and Sharing comprehensive Life information in a prepared document with a provider in a memory care community, nursing home, home care provider or hospital becomes a Valuable Tool to enhance quality of care.   

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   Some items to include:

  • Basic current information: name, age, where they live now  

  • Where they were born and places they lived 

  • Significant relationships with family and friends

  • Childhood times and Working life

  • Significant places and life events

  • Holidays and Cultural info

  • Music/TV preferences

  • Activities they enjoy/don’t enjoy

  • Pets

  • Music preferences

  • Faith or Spiritual beliefs/routines

  • Preferences with their appearance

  • Food likes and dislikes - current & past

  • Routines, triggers and "chill pills"

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